The Kosmix RightHealth Blog

February 15, 2008

Understanding Fibromyalgia

Filed under: righthealth — Tags: , — matthewkrajewski @ 12:41 am

By: Matthew Krajewski

 

 

 

When I saw this commercial from Lyrica I was a bit taken aback. I had heard about Fibromyalgia (FM), but was unaware of the enduring and widespread pain associated with the condition, nor was I aware that the FDA only recently approved prescription Lyrica to help manage fibromyalgia. So I did a bit of poking around on the Web to determine what exactly is Fibromyalgia, and why getting a prescription drug on the market took so long.

 

What is striking is that the woman in the commercial has to insist that fibromyalgia is a real condition, which hints at an existing debate over the reality of the disease. The NY Times article examining the use of Lyrica took such a tone, putting the validity of the very existence of fibromyalgia into question. What the NY Times pointed out somewhat ominously, was that even if fibromyalgia is not real, the potential side effects of the drug Lyrica, which include sleepiness, dizziness, and weight gain, are real.

 

We all have odd pains from time to time, but what sticks out in fibromyalgia sufferers is widespread musculoskeletal aches, stiffness of joints and limbs, generalized pain, skin tenderness, and fatigue. While not trying to belittle the seriousness of the disease, it sounds as though the pain is analogous to doing trying physical labor, then running a marathon, getting a bad sunburn, and not sleeping for days on end; all these things taken together may give an idea of the level of pain we are addressing when discussing fibromyalgia sufferers. It is no small wonder then, that fibromyalgia can seriously impede the quality of life of those diagnosed. However, diagnosis of the disease can take upwards of over five years since the origins of the disease are unknown, and the symptoms typically overlap with other diseases or conditions.

 

Fibromyalgia is not a life threatening illness, and there is no evidence supporting that the disease gets worse over time, although sufferers often experience a waxing and waning of symptoms, and at times even remission of the disease. FM afflicts more women than men, and the disease may afflict as many as 6% of the U.S. population.

Researchers now believe that genetics play a major role in an individual’s predisposition to fibromyalgia. Other research including brain analysis has determined that those with fibromyalgia have a nervous system that interprets pain abnormally, which can be a valuable piece in helping to unravel the mysteries of fibromyalgia.

With Lyrica introduced into the market, there is even more hope for fibromyalgia sufferers, although Lyrica is not necessarily a silver bullet for managing the disease. There is still a long way to go to understand fibromyalgia, and probably other paths on the horizon to managing the condition.

9 Comments »

  1. I started a fibromyalgia support group here: http://fibromyalgia.ning.com

    Comment by Khürt Williams — February 16, 2008 @ 4:34 pm

  2. I too suffer from Fibromyalgia. My primary disease is Sjogrens Syndrome, they both seem to go hand-n-hand.

    Comment by dj3756 — February 18, 2008 @ 2:52 pm

  3. I was diagnosed 10 years ago with fibromyalgia. And yes over time it does get worse. I take a very high dose of Lyrica, but I am not for sure it helps. I have pain so bad ,I take morphine. I have really suffered. I am a nurse but I only work on weekends because of it. My bills are piling up and I don’t know what I am going to do. I am really in a mess. My favorite thing to do is go to bed. I can take a sleeping pill and at least not know I am in pain for a few hours

    Comment by marsha becher — March 18, 2008 @ 5:37 am

  4. I am a Fibromyalgia sufferer, and I also think that it gets worse over time as well. I am currently taking sleeping pills, flexeril, and antidepressants, but it they never take the pain completely away, the only time that I’m not in pain is when I’m sleeping. And I dont know what to do about it.

    Comment by LaShawnda Richardson — March 20, 2008 @ 7:51 pm

  5. I also suffer from fibromyalgia I was diganosed with it in 1995 although I wanted to let you know that I have had a great deal of success using the combination of flexeril (muscle relaxer) and Ultram (pain blocker) the combination of the two that gives me the greatest success is 100mg ultram PRN usually twice a day and 10mg flexeril 3 times a day. I hope this helps someone else, don’t get your hopes up I still can’t work a real job, but I can manage to stay awake and visit with people as well as manage outings with my family so that I don’t loose out on anymore of life than I have to.

    Comment by Dave Schappaugh — April 16, 2008 @ 12:36 pm

  6. My case has yet to become as absolutely bad as stories I’ve heard, and I’m grateful for that, and there are so many courageous women out there. Bind together. I have a closet drugs, and when necessary there is nothing else for it but to go to them, though I have been trying to ease myself into other less severe solutions, at least some of the time… Does anyone here have any suggestions on similar helpful things I can do?

    Comment by j — April 28, 2008 @ 12:30 pm

  7. My 23 year old daughter was diagnosed a year a go with fibromyalgia. Sometimes my husband and I can’t even touch her bc her skin hurts; at those times she can’t even wear clothes. I wondered if anyone else has this symptom. We haven’t been able to find any medication that helps or lessens the pain at all. The usual NSAIDs and Lyrica didn’t seem to work. Does anone know of any herbal or homeopathic remedies we could try? We are willing to try anything. This kid was a Dean’s List college student, she had to leave school bc she is hurting all th time.

    Comment by sheilah ballard — May 1, 2008 @ 9:21 pm

  8. “an existing debate over the reality of the disease”. Actually, the debate has been ongoing for as long as I can remember. I used to be a disability examiner for the social security administration (social security disability and SSI disability claims) and my experience was that the condition is not taken seriously at all by the federal government. The mere fact that a pharmaceutical has been approved to treat fibromyalgia is definitely a step forward. Unfortunately, it doesn’t change the fact that disability cases involving fibromyalgia can be tough to win (but certainly not impossible).

    Comment by Tim — May 7, 2008 @ 8:01 pm

  9. Lyrica is far from the only medication that can be used to treat fibromyalgia. There are hundreds of different medications and the fact that they haven’t yet gained FDA approval doesn’t mean they are any less effective than pregabalin (for example, gabapentin is a drug very similar to pregabalin and likely to work just as well, but it’s somewhat cheaper and some people who can’t tolerate Lyrica can tolerate it). My book “Reviving the Broken Marionette: Treatments for CFS/ME and Fibromyalgia” features over 250 medications that can be used to treat FM.

    For sheilah, please do your research. Homeopathy is a hoax. Sure the placebo effect can offer some help, but why use a placebo when you could use something that actually has real effects on the nody? Herbs can be helpful for many conditions, but there are very few that are useful in fibromyalgia (though there are other nutritional supplements that can help, such as magnesium malate, DL-phenylalanine, bromelain and MSM).

    Comment by Maija Haavisto — May 12, 2008 @ 6:41 am


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